Day 129 – nothing like a smile

Hi Everyone, I’m waiting for the team report but I did find out that the evaluation from yesterday was to consider Corey as a candidate for a Muscle Block. We will share more details as they educate us but the thought is (if it works) it will help loosen the stiff...

Day 128

Hi Everyone, We’re not sure what kind of day Corey had, but we do know that there was some sort of evaluation. Her roommate and a few other patients told us that Corey was in the gym with a circle of doctors, nurses and therapists around her. Sounds to me like she was...

Day 127 – ready…GO

Hi Everyone, Once again, we have to thank each of you for your unconditional love and support as we learn to cope with our new life. There are many sayings that are nonchalantly quoted. Their true meaning lost in its casual reference. For example, ‘when one door...

Day 126 – She’s “in there”

Hi Everyone, We agree that Corey is “in there”. There are times when she looks into our eyes and the connection resonates throughout our whole body. She hears us, she watches us and she tries so hard to communicate. We will continue to talk with her and allow her the...

Day 125 – 3 times 3

Hi everyone, I finally reached Dr. Long, via phone. He shared with me that Corey’s shunt is now at 120. She will have a follow up CT next week to take another look at the ventricles. When the Doctors decided to turn the shunt on, they were hoping it would relieve any...