1yr; Day 438 – visit from an ICU nurse

Hi everyone, It was a rough day for our girl. I’ve called the ENT for a follow up appointment. We’ll be going back in on Monday. Corey’s mouth pain has intensified. We’re almost 90% sure it’s neurological and not clinical so we may just be looking for ways to help her...

1yr; Day 437 – vision testing

Hi Everyone, Our appointment went well today. Corey handled the long day beautifully. We left the house at 7am to drive into Philly for a 9am appointment. We don’t live 2 hours from Philadelphia but with rush hour traffic, parking and logistically moving Corey our...

1yr; Day 436

Hi Everyone, I haven’t written in a few days and it feels as if I’ve missed a month! I begin each daily post questioning what will I write? Some days it’s difficult to find the words and other days it’s difficult to edit because there is so much to share. Today is one...

1yr; Day 432

Hi Everyone, Corey is working hard and I’m happy to report another first. This afternoon she not only moved her left arm, she opened her left hand (delayed but on command) and she didn’t cheat with the right hand helping the left! It wasn’t a reflex move either…she...

1yr; Day 431 – renaissance means rebirth

Corey, The Christmas season is in full swing and I’m so happy to have you home. I know that you like to be the keeper of the traditions but on Thanksgiving, (while you were asleep), JohnPaul and Caitlin decided that we’re starting all new traditions this year. Having...