Hi Everyone,

Today was a day of rest. I’m not sure that’s a good thing, I’m actually a little worried about Corey. She was very tired and slept for the better part of the day/evening. She has been eating so well but today didn’t seem to have an appetite. She did get physically sick this afternoon which can happen. She receives her medications with water in her feeding tube. If they are administered too quickly, she gets sick. It could be that or it could be she’s coming down with something. I’m trying not to read too much into it but I can’t help but fear she’s preparing for another seizure as I’ve noticed some changes in her behavior. Days like today have me on edge as if I’m holding a live grenade…when is it going to explode?

We are looking forward to tomorrow. My friends from Connecticut are arriving in the morning and Corey’s girlfriend from Long Island will be coming down for the rally. We hope Mother Nature will hold off on the rain between 4:30-6:00 pm, but rain or shine we’ll be there to show how important this is and what it means to our community.

Time for sleep; rest is a vital component to heal both of us. Happy dreams xoxo