Day 188 – wave goodbye

Hi Everyone, Let the renovations begin. The back-up “Mom’s” are looking forward to hanging out and spoiling Corey. Volunteers are waiting to report and supplies have been purchased. We’re ready to start. Unfortunately, Corey was physically sick again today. This time...

Day 187 – exhaustion, excitement, relief

Hi Everyone, Have you ever felt so completely exhausted you didn’t think you had an ounce of energy left? Was there a time that you thought, ‘no way, I can’t do one more thing to push towards the outcome or effort you were hoping to achieve’. A long time ago, I...

Day 186 – redirect to what matters more

Hi Everyone, When I arrived at the hospital tonight, Corey was in her new wheelchair. It’s not the car she wanted but she’s got new wheels! It’s custom, very techno and flatters her eyes; it’s got a blue frame! She had an extremely busy day and was exhausted by the...

Day 185 – the purpose of fear is NOT to stop you

Hi Everyone, The insurance company has told Bryn Mawr that their last covered day is tomorrow, 4/6. I am in the process of appealing to Blue Cross. The neurosurgeon faxed me his report which I hope will be influential to the insurance company. I am also appealing to...

Day 184 – Part 1 & 2

Hi Everyone, The pin was pulled from the grenade and today it exploded! We have been officially denied further coverage to stay at Bryn Mawr. I will be calling to start the appeal tomorrow. I will be meeting with our case manager to discuss details including what home...