Day 358 – learning to travel

Hi Everyone, We had a great weekend. Caitlin, Corey, our nurse and I headed for Long Island on Friday. It was a very difficult drive up in the rain and traffic. It took us 4 hours to get from our home to Exit 8 on the Jersey Turnpike. For those of you out of town,...

Day 356 –

Hi Everyone, Corey felt a little better yesterday but as the day and evening progressed it was a bit of a roller coaster. This morning started well then took a turn in reverse. This is par for the course but we had a secret weapon to help her turn that frown upside...

Day 354 – “dis” ability

Hi Everyone, We’ve had a rough couple of days. Corey has not been feeling well in addition to a few more temper tantrums. She’s been nauseous, physically sick as well as tired which we hope is due to the increase in seizure medications and not a bug that seems to be...

Day 352 – kneel standing

Hi Everyone, Corey had a good day today. She is still dealing with increased reflux but hopefully that will resolve it self with the added dosage. I have noticed that Corey tires more easily since her seizure last Thursday. She will also sleep for a short period twice...

Day 351 – a lesson on noise

Hi Everyone, We made it back in for the race! I added a dozen new pictures of Corey and her cousins/runners. Christy managed to get us a VIP/Media parking pass. I don’t know how she pulled it off but we were parked at the finish line so we didn’t have to maneuver the...