1yr; Day 387 – the best of “what is”

Hi Everyone, Corey had a rough start to her day but once again, rallied to a successful end. She had a rough PT session which is to be expected after a travel weekend. Although the nurse and I ranged her several times a day while we were away, it does not come close...

1yr; Day 386 – who’s your favorite?

Hi Everyone, We had a great weekend! Rye is three hours from our home. The ride up was going along well until the last 15 minutes when Corey became car sick. The van has a hollow center channel for the wheelchair to roll up towards the front of the van. When we travel...

1yr; Day 383 – 4 minutes 20 seconds

Hi Everyone, Corey had a very good day. I spoke at length to Diane, her speech therapist, about the choking episode from the night before. Diane has been working in her field for many years and is an invaluable resource for us. We discussed the change in Corey’s...

1yr; Day 382 – “new mom” again

Hi Everyone, I left for work before Corey was awake this morning. In the last year there have been moments that remind me of when I was a “new” mom. I find that I am reliving many of the ‘new mom’ emotions, always experimenting with trial and error techniques and...

1yr; Day 381 – the smallest movement

Hi Everyone, Today was not the best day. Corey’s day started with a good speech session but then the day slowly became more difficult for her. She had a great deal of mouth pain and she was very tired. PT didn’t go well and when Corey’s teacher was reading to her, she...