1yr; Day 582 – Botox, foot drop and no therapy

Hi Everyone, It’s been a quiet weekend which is just what we needed after our long week. The presentation to the PA Brain Injury Coalition went well Friday morning. I spoke for 30 minutes with a 20 minute Q/A from the assembly. The Coalition is comprised of the Dept....

1yr; Day 552 – starting new

Hi Everyone, I have been preparing for my meeting with Senator Dominic Pileggi. Part of that preparation has been to reread parts of this journal. A year ago this week we were beginning the appeals for the forced discharged from Bryn Mawr. It’s strange to look back at...

1yr; Day 551 – passed soft food not liquids

Hi Everyone, Corey did very well in the swallow study; however, she did not pass liquid consistency yet. That’s okay, it’s a matter of time. Until then we still give her water through her peg tube for hydration. Now that she’s passed soft solid foods we celebrated...

1yr; Day 550

Hi Everyone, It was a beautiful day in New London! Corey had an early speech session followed by PT. It was so lovely out we decided to take advantage of the weather and our beautiful deck. Corey walked along the perimeter of the deck for 12’. I tried to film the...

1yr; Day 549 – Ambidextrous

Hi Everyone, Another big day of firsts for Corey! We were very excited for Alice’s visit this morning to show her the progress Corey’s made moving her left arm and opening her left hand. What I love best about our therapy team is their acknowledgement of Corey’s...