1yr; Day 697 – Super Senior

Hi Everyone, Today was Corey’s first day of school. She is not a sophomore in college but a 2nd year super senior in High School. We are very fortunate to be receiving PT/OT and Cognitive/Educational services from our school district. For those of you that are...

1yr; Day 727 – passed swallowing “thins”

Hi Everyone, We have a happy surprise to tell you. Not that we’ve been holding out on you but… The past two months Corey’s been working on swallowing thins. This is the last step before she gets her feeding tube removed. This morning she had a comprehensive video...

1yr; Day 696 – learning to walk away

Hi Everyone, Despite a little more sleep last night we are beginning to see the fatigue patterns in Corey’s day. The morning session 11-12 is tough but she is doing very well during the 2-3 session. We are going to try to keep PT in the afternoon. Corey did very well...

1yr; Day 695 – favorite sister moment

Hi Everyone, Today’s post is all about Caitlin. She surprised us with the news that she re-arranged her work schedule today and tomorrow so she could be with Corey at Bryn Mawr (she traded two single days for doubles this weekend) Corey loves spending time with...

1yr; Day 694 – put Balance on the ToDo list

Hi Everyone, The weekend get-away was awesome! We had an easy paced, relaxing visit. Our last visit to Louise and John’s house in December 2011 we propped their son’s skate board ramp against the staircase leading to their front porch. It took several men to help...