2yrs; Day 953 – Mother’s Day gift

Happy Mother’s Day, Last night Caitlin took the night shift. We switched this morning at 6am. After morning meds Corey and I fell back to sleep as she was miss party pants keeping Caitlin company between 1-4am. We slept in until 10am! Corey’s usual morning...

2yrs; Day 950 – “don’t think I’m disabled”

Hi Everyone, It’s hard to believe that one year ago today Corey had tendon lengthening surgery. At that time she was just beginning to eat soft solids, still had formula during the night in her feeding tube, couldn’t move her left arm and was just managing to propel...

2yrs; Day 949 – TBI can make you laugh

Hi Everyone, Wednesday’s and Friday’s are slower paced than the rest of the days in the week. Corey didn’t sleep much last night and took advantage of the quiet morning to sleep in. We have a nurse on these days which allows me time to run out to accomplish errands or...

2yrs; Day 948 – Corey’s perception

Hi Everyone, Yesterday was definitely a Monday! Driving home from Bryn Mawr this afternoon I had a fleeting thought of heading to the airport…I have a credit card and can buy whatever I need when I get to whatever remote hide-away I choose. Sometimes daydreaming can...

2yrs; 7 months – Life keeps moving

Hi Everyone, We have lived in our neighborhood for 22 years. It’s a small development that was quickly filled with many children. Our home is positioned in the center of the neighborhood. Although the girls had a big brother, the house behind us provided them with...