4yrs; Day 1468 – Rx changes function

Hi Everyone, Natalie tested Corey on her timed long distance walk, her timed short distance walk, her timed sit/stands and her staircase test. Good news/Bad news… Bad news-Corey’s numbers dropped (we will confirm against the documented numbers from last...

4yrs; Day 1466 – Rx changes function

Hi Everyone, We have been working through the medication changes as best we can. There are some good signs and some concerning signs with the change; all of which was to be expected. Corey has shown signs of two simple partial seizures, delayed speech, sudden onset of...

4 years

Life is a series of collisions with the future; it is not the sum of what we have been, but what we yearn to be ~ Jose Ortega y Gasset Hi Everyone, Yesterday was an emotional day. Tears randomly flowed. I closed the day with the usual search for inspiration to help me...

3yrs; Day 1459 – from Corey

hello everyone, this is corey who has bean busy for quite a long time. i apologize so much; however, now i am back on with my computer so i hope you’re not trying to get rid of me yet. 1. i have been exercising my butt off 2. i also got botox which will help me...